You may know Lois Jarvis who was instrumental along with the Citizens for Quality Health Care (CFQHC) for saving our Campbell River Hospital and initiating the no fee parking at our new hospital. Now Lois needs our help.
Lois’s granddaughter Lauren has Hypereosinophilic Syndrome/Eosinophilic Granulomatosis with Polyangiitis. Both diseases are ultra rare and cause death by organ failure without treatment.
Treatment was recently found, but the federal government needs to implement the National Strategy for Drugs for Rare Diseases (NSDRD) for Lauren to access treatment. Funding for rare diseases medicine also needs to be implemented.
Currently, according to the Orphanet Journal of Rare Diseases, “Historical and Projected Public Spending on Drugs for Rare Diseases in Canada from 2010 to 2025,” spending as of 2021 figures for rare disease care is only 3.2 % of the National Health Care Budget and is expected to only rise to 8% of the total National Health Care Budget by 2025. So, it won’t break the national health care budget to offer treatment to rare disease patients who should be offered the same quality of health care as everyone else.
Rachel Blaney, North Island MP, has prepared a petition which she will present to Parliament. If you have already signed the petition to be mailed to Rachel’s office you cannot sign this one.
For everyone who has not signed it please do so with our thanks and appreciation. Please get
your friends and family to sign it and feel free to post it on Facebook.
PLEASE MAIL THE PETITION WITH SIGNATURES ON SEPT. 30TH EVEN IF THE PAGES ARE NOT FULL, EVERY SIGNATURE HELPS. MAIL THE SIGNED PETITION TO: Rachel Blaney, MP / House of Commons / Ottawa, ON / K1A 0A6 (Please use an envelope. No postage required.)
The link to the petition is:
Thank you for your consideration,
Leona Adams
Campbell River