Cystic fibrosis (CF) is a fatal disease that fills the lungs with fluid; it’s like drowning on the inside.
Each week in Canada, one person dies from CF – the most common fatal genetic disease that affects Canadian children and young adults. There is no cure.
This May, volunteers from CF Canada, Campbell River Chapter are asking residents to learn more about CF and to help Canadian families affected by this life-altering disease.
Sylvanna Denroche must consume a large number of enzymes, over 20 pills each day, to help absorb nutrients from food, and follow a demanding daily routine of physical and inhalation therapy to keep her lungs free of infections.
Diagnosed with CF at 11 months of age Sylvanna’s parents dream of the day when a cure will be found.
“Many Canadians don’t know what CF is and how it affects families,” said River Stoppard, Sylvanna’s mother. “During May, I invite residents to visit drowningontheinside.ca and join us for the Great Strides Walk.”
Raffle
Beth Hamilton Memorial Diamond Bracelet Raffle: Tickets for the raffle are now on sale and will be drawn at the Rod Brind’Amour CF Golf Classic dinner on June 25.
The winner will receive a 10-carat yellow gold bracelet which includes a centre .33 Canadian diamond. For the past four years Beth Hamilton organized a diamond raffle to raise funds for cystic fibrosis, the disease affecting her son Michael. Sadly, Beth lost her own battle with multiple myeloma less than a year ago.
Tickets are available at Preston Jewellers until June 24.
Great Strides
Join the annual Great Strides walk on Sunday, May 29 and help take steps to cure cystic fibrosis.
Great Strides will take place at Penfield School, registration at 10:15 a.m., start 11 a.m. There will be a barbecue lunch, prizes and activities for children. Proceeds from the walk fund vital CF research and care.
To register or make a donation, visit www.cysticfibrosis.ca/greatstrides