For more than 25 years, Cystic Fibrosis Canada Campbell River Chapter has played an important role in the lives of people with cystic fibrosis in our community.
As part of Cystic Fibrosis Canada’s (formerly known as the Canadian Cystic Fibrosis Foundation) national rebranding strategy, the chapter is changing its name and look to increase awareness of the cause, and raise increased funds for important cystic fibrosis research and care.
Cystic fibrosis (CF) is the most common, fatal genetic disease affecting Canadian children and young adults. Cystic fibrosis affects breathing and digestion, there is no cure.
River Stoppard, a Campbell River mother of a seven-year-old girl with the disease, knows first hand the devastation cystic fibrosis can cause. When her daughter Sylvana was diagnosed with cystic fibrosis in 2004, River and her partner, Steve, were crushed. After adjusting to the news, the Stoppard –Denroche family vowed to do their part in the fight against cystic fibrosis. River says she looks forward to sharing her family’s story at the launch to raise awareness of her daughter’s disease.
“As parents of a child with cystic fibrosis, we know that the battle against the disease is a race against time,” said River.
A 25 year celebration for the Campbell River chapter will be held on March 12 at the museum. Mark Chilvers (director of the cystic fibrosis clinic at B.C. Children’s Hospital) will be the guest speaker.